'…your breath is all that gives me life'
I made a comic about what it feels like (to me) to cope with having an invisible illness and the judgements and accusations that sometimes come with invisible illnesses.
I did it in green ‘cause that’s the color of the Celiac Awareness ribbon Celiac is one of the “imaginary” “all in your head” “stupid” “hypochondriac” invisible illnesses I live with.
So here. Be nice to people in general, because it’s the right thing to do, but if you can’t at least do that then please don’t be an asshole when someone tells you that they have Lupus or Celiac or Fibromyalgia or any of the other things that we live with every day that you can’t see on the surface.
so much this.
some days i can hike five miles on rocky ground and feel great. some days i can barely hobble to the end of the block. the really exciting one is when i hike five miles on rocky ground, feel absolutely fantastic, and the next day i’m lying on the bathroom floor puking from pain.
i know it’s inconvenient that i can’t schedule an activity in advance and know whether i’ll be able to do it. my friends are always saying things like “we should go to the state park and look at the leaves turning before it’s too late!” and i’m like “that would be cool, i’m not sure i can though” and i think maybe they interpret it as disinterest. but no. i’m longing desperately to go, i want to go, i want to see that, i want to be there. but whether i’ll be a hiking powerhouse or a crippled wreck can depend on something as tiny and unpredictable as whether my blanket slips down while i’m sleeping so a draft runs down my back. or whether i have to suddenly check my stride to avoid stepping on the cat as i go down stairs. i honestly, legitimately cannot tell you whether i’ll be able to go hiking with you on a certain day. i honestly, legitimately do not know until i get up and start moving around whether i’ll even be able to make it to the grocery store.
fortunately, the people around me are awesome and do not accuse me of lying or exaggerating or anything like that. and i have good health insurance, so i’ve been able to get cortisone shots and physical therapy, which has made a huge difference. but it’s still frustrating for everyone how unpredictable my symptoms are.
Iranians playing in the first ever snow in 30 years at the ruins of Naghsh-e-Rostam. (Picture by Newsha Tavakolian for National Geographic Magazine)
“sometimes the beauty of my people is so thick and intricate. i spend days trying to undo my eyes so i can sleep.” ― Nayyirah Waheed
by Barron Claiborne
Tunisia + Landscapes
(4th picture by : Alain Bachellier)